DOI: 10.17151/hpsal.2021.26.1.5
Cómo citar
1.
Bedoya Carvajal OA, Cardona Arango D, Segura Cardona AM, Mera Mamian AY. Dimensiones de la medición de la calidad de vida en personas trans: una revisión sistemática. Hacia Promoc. Salud [Internet]. 1 de enero de 2021 [citado 5 de julio de 2022];26(1):37 -51. Disponible en: https://revistasojs.ucaldas.edu.co/index.php/hacialapromociondelasalud/article/view/4317

Autores/as

Oscar Augusto Bedoya Carvajal
Universidad CES
oscar.bedoya01@uniremington.edu.co
http://orcid.org/0000-0001-6343-8702
Perfil Google Scholar

Resumen

La calidad de vida está compuesta por elementos subjetivos y objetivos que varían entre la población, para su adecuada medición se han generado diversos instrumentos con el propósito de obtener una adecuada medición. Objetivo: identificar las dimensiones de calidad de vida que se han evaluado en personas trans. Métodos: revisión sistemática de la literatura científica aplicando un protocolo de investigación con términos de búsqueda “quality of life” y “transgender”; realizada por cuatro investigadores para verificar la información encontrada. Resultados: inicialmente se identificaron 565  artículos, después de un proceso de revisión se eligieron 34 publicados entre los años 2006 y 2018. Se encontraron 13 herramientas para medir la calidad de vida en población trans. Las más utilizadas fueron las genéricas (38,2%), las de calidad de vida relacionada con la salud (35,3%) y las relacionadas con la voz (20,6%), las dimensiones más evaluadas fueron la física, la psicológica y la social. Conclusión: la calidad de vida en esta población debe medirse de manera más ajustada teniendo en cuenta las realidades de dicho grupo humano. Se identificó un bajo número de instrumentos de calidad de vida diseñados específicamente para las personas trans.

Mayo NE. Dictionary of quality of life and health outcomes measurement. Montreal: ISOQOL; 2015

The WHOQOL group. The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995; 41 (10): 1403-1409. Disponible en https://doi.org/10.1016/0277-9536(95)00112-K

Cella D, Tulsky D. Measuring quality of life today: methodological aspects. Oncology (Williston Park, N.Y.). 1990; 4 (5): 29-38.

García A. Tacones, siliconas, hormonas y otras críticas al sistema sexo-género. Feminismos y experiencias de transexuales y travestis. Rev Colomb Antropol. 2009; 45 (1): 119-46. Disponible en http://www.redalyc.org/articulo.oa?id=105012398005

Organización Panamericana de la Salud. Salud para personas trans: debaten recomendaciones para servicios de salud [Internet]. OPS/OMS; 2017. Disponible en http://www.paho.org/hq/index.php?option=com_content&view=article&id=6286%3A2011-salud-personas-trans-debatenrecomendaciones-servicios-salud&catid=1443%3Aweb-bulletins&Itemid=135&lang=es

Corte Constitucional. Sentencia SU-214 Aprobación del matrimonio civil entre parejas del mismo sexo [Internet]. 2016. Disponible en http://www.corteconstitucional.gov.co/relatoria/2016/su214-16.htm

Corte Constitucional. Sentencia T-063 Derecho a la corrección del sexo en el Registro Civil y demás documentos de identidad de las personas trans. [Internet]. 2015. Disponible en http://www.corteconstitucional.gov.co/RELATORIA/2015/T-063-15.htm

Nobili A, Glazebrook C, Arcelus J. Quality of life of treatment-seeking transgender adults: A systematic review and meta-analysis. Rev Endocr Metab Disord. 2018; 19: 199-220. Disponible en https://doi.org/10.1007/s11154-018-9459-y

Santos CM da C, Pimenta CA de M, Nobre MRC. The PICO strategy for the research question construction and evidence search. Rev Lat Am Enfermagem. 2007;15 (3): 508-11. Disponible en https://doi.org/10.1590/S0104-11692007000300023

von Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP, STORBE Iniciative. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Ann Intern Med. 2007; 147 (8): 573-7. Disponible en https://doi.org/10.7326/0003-4819-147-8-200710160-00010

van der Windt DA, Thomas E, Pope DP, de Winter AF, Macfarlane GJ, Bouter LM, Silman AJ. Occupational risk factors for shoulder pain: a systematic review. Occup Environ Med. 2000; 57 (7): 433-42. Disponible en https://doi.org/10.1136/oem.57.7.433

Silva FC da, Arancibia BAV, Iop R da R, Filho PJBG, Silva R da. Escalas y listas de evaluación de la calidad de estudios científicos. Rev Cuba Inf En Cienc Salud. 2013; 24 (3). Disponible en http://dx.doi.org/10.36512/rcics.v24i3.438

Agarwal CA, Scheefer MF, Wright LN, Walzer NK, Rivera A. Quality of life improvement after chest wall masculinization in female-to-male transgender patients: A prospective study using the BREAST-Q and Body Uneasiness Test. J Plast Reconstr Aesthet Surg. 2018; 71 (5): 651-657. Disponible en https://doi.org/10.1016/j.bjps.2018.01.003

Ainsworth TA, Spiegel JH. Quality of life of individuals with and without facial feminization surgery or gender reassignment surgery. Qual Life Res. 2010; 19 (7): 1019-1024. Disponible en https://doi.org/10.1007/s11136-010-9668-7

Auer MK, Liedl A, Fuss J, Nieder T, Briken P, Stalla GK, et al. High impact of sleeping problems on quality of life in transgender individuals: A cross-sectional multicenter study. PloS One. 2017; 12 (2): e0171640. Disponible en https://doi.org/10.1371/journal.pone.0171640

Awad MC, Vieira MR, Chalub M, Schiavini JL, da Silva EA, Damiao R. Quality of life of transgender patients: The impact of hormonal therapy and sex reassignment surgery. J Sex Med. 2010; 7: 64.

Bartolucci C, Gómez-Gil E, Salamero M, Esteva I, Guillamon A, Zubiaurre L, et al. Sexual quality of life in gender-dysphoric adults before genital sex reassignment surgery. J Sex Med. 2015; 12 (1): 180-188. Disponible en https://doi.org/10.1111/jsm.12758

Basar K, Oz G, Karakaya J. Perceived Discrimination, Social Support, and Quality of Life in Gender Dysphoria. J Sex Med. 2016; 13 (7): 1133-1141. Disponible en https://doi.org/10.1016/j.jsxm.2016.04.071

Bertrand B, Perchenet AS, Colson TR, Drai D, Casanova D. Female-to-male transgender chest reconstruction: A retrospective study of patient satisfaction. Ann Chir Plast Esthet. 2017; 62 (4): 303-307. Disponible en https://doi.org/10.1016/j.anplas.2017.05.005

Briggs PC, Hayes S, Changaris M. Somatic Experiencing® Informed Therapeutic Group for the Care and Treatment of Biopsychosocial Effects upon a Gender Diverse Identity. Front Psychiatry. 2018; 9: 53. Disponible en https://doi.org/10.3389/fpsyt.2018.00053

Cardoso da Silva D, Schwarz K, Fontanari AMV, Costa AB, Massuda R, Henriques AA, et al. WHOQOL-100 Before and After Sex Reassignment Surgery in Brazilian Male-to-Female Transsexual Individuals. J Sex Med. 2016; 13 (6): 988-993. Disponible en https://doi.org/10.1016/j.jsxm.2016.03.370

Davey A, Bouman WP, Arcelus J, Meyer C. Social Support and Psychological Well-Being in Gender Dysphoria: A Comparison of Patients with Matched Controls. J Sex Med. 2014; 11(12): 2976-85. Disponible en https://doi.org/10.1111/jsm.12681

Dacakis G, Davies S, Oates JM, Douglas JM, Johnston JR. Development and Preliminary Evaluation of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals. J Voice. 2013; 27 (3): 312-320. DOI: 10.1016/j.jvoice.2012.11.005

dos Santos HH de ANM, Aguiar AG de O, Baeck HE, Van Borsel J. Translation and preliminary evaluation of the Brazilian Portuguese version of the Transgender Voice Questionnaire for male-to-female transsexuals. CoDAS. 2015; 27 (1): 89-96. DOI: https://doi.org/10.1590/2317-1782/20152014093

de Vries ALC, McGuire JK, Steensma TD, Wagenaar ECF, Doreleijers TAH, Cohen-Kettenis PT. Young Adult Psychological Outcome After Puberty Suppression and Gender Reassignment. Pediatrics. 2014; 134 (4): 696-704. DOI: 10.1542/peds.2013-2958

Gomez-Gil E, Zubiaurre-Elorza L, de Antonio IE, Guillamon A, Salamero M. Determinants of quality of life in Spanish transsexuals attending a gender unit before genital sex reassignment surgery. Qual Life Res Int J Qual Life Asp Treat Care Rehabil. 2014; 23 (2): 669-676. DOI: 10.1007/s11136-013-0497-3

Gorin-Lazard A, Baumstarck K, Boyer L, Maquigneau A, Gebleux S, Penochet J-C, et al. Is Hormonal Therapy Associated with Better Quality of Life in Transsexuals? A Cross-Sectional Study. J Sex Med. febrero de 2012; 9 (2): 531-541. DOI: 10.1111/j.1743-6109.2011.02564.x

Gorin-Lazard A, Baumstarck K, Boyer L, Maquigneau A, Penochet JC, Pringuey D, et al. Hormonal therapy is associated with better self-esteem, mood, and quality of life in transsexuals. J Nerv Ment Dis. 2013; 201 (11): 996-1000. DOI: 10.1097/NMD.0000000000000046

Hancock AB. An ICF Perspective on Voice-related Quality of Life of American Transgender Women. J Voice. 2017; 31 (1): 115. e1-115.e8. DOI: 10.1016/j.jvoice.2016.03.013

Hancock AB, Krissinger J, Owen K. Voice Perceptions and Quality of Life of Transgender People. J Voice. 2011; 25 (5): 553-558. DOI: 10.1016/j.jvoice.2010.07.013

Hasan S, Alviany Y, Clarissa C, Kusuma SS. High perceived discrimination and no family support increase risk of poor quality of life in gender dysphoria. Universa Med. 2017; 36 (3): 187-196. DOI:10.18051/UnivMed.2017.v36.187-196

Herrera JMS, Soto JC, Monroy SF, Niño JP, Ramírez GAB, Rincón CF, et al. Calidad de vida,función del tracto urinario y salud sexual en cirugía de reasignación de sexo hombre a mujer. Urol Colomb. 2016; 25 (2): 81-87. DOI: https://doi.org/10.1016/j.uroco.2015.12.003

Hess J, Breidenstein A, Henkel A, Tschirdewahn S, Rehme C, Teufel M, et al. Satisfaction, quality of life and psychosocial resources of male to female transgender after gender reassignment surgery. Eur Urol Suppl. 2018; 17 (2): e1748. Disponible en: https://d-nb.info/1191692728/34

Hoy-Ellis CP, Shiu C, Sullivan KM, Kim H-J, Sturges AM, Fredriksen-Goldsen KI. Prior Military Service, Identity Stigma, and Mental Health Among Transgender Older Adults. Gerontologist. 2017; 57 (1): S63-71. DOI: 10.1093/geront/gnw173

Jellestad L, Jaggi T, Corbisiero S, Schaefer DJ, Jenewein J, Schneeberger A, et al. Quality of Life in Transitioned Trans Persons: A Retrospective Cross-Sectional Cohort Study. Biomed Res Int. 2018; 8684625. Disponible en https://doi.org/10.1155/2018/8684625

Lindqvist EK, Sigurjonsson H, Mollermark C, Rinder J, Farnebo F, Lundgren TK. Quality of life improves early after gender reassignment surgery in transgender women. Eur J Plast Surg. 2017; 40 (3): 223-226. DOI: 10.1007/s00238-016-1252-0

Meier SC, Pardo ST, Labuski C, Babcock J. Measures of Clinical Health among Female-to-Male Transgender Persons as a Function of Sexual Orientation. Arch Sex Behav. 2013; 42 (3): 463-474. DOI: 10.1007/s10508-012-0052-2

Meister J, Hagen R, Shehata-Dieler W, Kühn H, Kraus F, Kleinsasser N. Pitch Elevation in Maleto-female Transgender Persons—the Würzburg Approach. J Voice. 2017; 31 (2): 244. e7-244.e15. DOI: 10.1016/j.jvoice.2016.07.018

Mora E, Carrillo A, Giribet A, Becerra A, Lucio MJ, Cobeta I. Translation, Cultural Adaptation, and Preliminary Evaluation of the Spanish Version of the Transgender Voice Questionnaire for Male-to-Female Transsexuals (TVQ MtF). J Voice. 2018; 32 (4): 514. e1-514.e6. DOI: 10.1016/j. jvoice.2017.05.012

Motmans J, Meier P, Ponnet K, T’Sjoen G. Female and Male Transgender Quality of Life: Socioeconomic and Medical Differences. J Sex Med. 2012; 9 (3): 743-750. DOI: 10.1111/j.1743-6109.2011.02569.x

Newfield E, Hart S, Dibble S, Kohler L. Female-to-male transgender quality of life. Qual Life Res. 2006; 15 (9): 1447-1457. DOI: 10.1007/s11136-006-0002-3

Ozata-Yildizhan B, Yuksel S, Avayu M, Noyan H, Yildizhan E. Effects of Gender Reassignment on Quality of Life and Mental Health in People with Gender Dysphoria. Turk Psikiyatri Derg Turk J Psychiatry. 2018; 29 (1): 11-21. Disponible en: https://pubmed.ncbi.nlm.nih.gov/29730870/

Tagay S, Breidenstein A, Friederich HC, Ruebben H, Teufel M, Hess J. Development and Validation of the Essen Transgender Quality of Life - Inventory in a Sample of Male-to-female Transgender Persons. Z Sex. 2018; 31 (1): 5-26. DOI: 10.1055/s-0044-101502

Thompson HM, Reisner SL, VanKim N, Raymond HF. Quality-of-Life Measurement: Assessing the WHOQOL-BREF Scale in a Sample of High-HIV-Risk Transgender Women in San Francisco, California. Int J Transgenderism. 2015; 16 (1): 36-48. DOI: 10.1080/15532739.2015.1039176

Valashany BT, Janghorbani M. Quality of life of men and women with gender identity disorder. Health Qual Life Outcomes. 2018; 16: 167. DOI: 10.1186/s12955-018-0995-7

van de Grift TC, Kreukels BPC, Elfering L, Ozer M, Bouman MB, Buncamper ME, et al. Body Image in Transmen: Multidimensional Measurement and the Effects of Mastectomy. J Sex Med. 2016; 13 (11): 1778-1786. DOI: 10.1016/j.jsxm.2016.09.003

Weigert R, Frison E, Sessiecq Q, Al Mutairi K, Casoli V. Patient satisfaction with breasts and psychosocial, sexual, and physical well-being after breast augmentation in male-to-female transsexuals. Plast Reconstr Surg. 2013; 132 (6): 1421-1429. DOI: 10.1097/01.prs.0000434415.70711.49

Yang X, Zhao L, Wang L, Hao C, Gu Y, Song W, et al. Quality of Life of Transgender Women From China and Associated Factors: A Cross-Sectional Study. J Sex Med. 2016; 13 (6): 977-987. DOI: 10.1016/j.jsxm.2016.03.369

Patel AA, Donegan D, Albert T. The 36-item short form. J Am Acad Orthop Surg. 2007; 15 (2): 126-134. DOI: 10.5435/00124635-200702000-00007

Ware JE. SF-36 health survey update. Spine. 2000; 25 (24): 3130-3139. DOI: 10.1097/00007632- 200012150-00008

Ware JE, Kosinski M, Turner-Bowker DM, Gandek B, QualityMetric Incorporated, New England Medical Center Hospital, et al. How to score version 2 of the SF-12 health survey (with a supplement documenting version 1). Boston: QualityMetric Inc.; Health Assessment Lab; 2005

Skevington SM. Measuring quality of life in Britain: introducing the WHOQOL-100. J Psychosom Res. 1999; 47 (5): 449-459. DOI: 10.1016/s0022-3999(99)00051-3

Suárez L, Tay B, Abdullah F. Psychometric properties of the World Health Organization WHOQOLBREF Quality of Life assessment in Singapore. Qual Life Res. 2018; 27: 2945-2952. Disponible en https://doi.org/10.1007/s11136-018-1947-8

Power M, Harper A, Bullinger M. The World Health Organization WHOQOL-100: tests of the universality of Quality of Life in 15 different cultural groups worldwide. Health Psychol Off J Div Health Psychol Am Psychol Assoc. 1999; 18 (5): 495-505. DOI: 10.1037//0278-6133.18.5.495

World Health Organization Quality of Life. The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Soc Sci Med 1982. 1998; 46 (12): 1569-85. DOI: 10.1016/S0277-9536(98)00009-4

Skevington SM, Lotfy M, O’Connell KA, WHOQOL Group. The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res Int J Qual Life Asp Treat Care Rehabil. 2004; 13 (2): 299-310. DOI: 10.1023/B:QURE.0000018486.91360.00

Eser E, Fidnner H, Fidaner C, Eser SY, Elbi H, Göker E. WHOQOL-100 ve WHOQOL-BREF’in psikometrik özellikleri. 1999; 7: 23-60. Disponible en https://www.researchgate.net/profile/Erhan_Eser3/publication/285059766_Psychometric_properties_of_the_WHOQOL-100_and_WHOQOLBREF/links/57aaf92e08ae3765c3b6f1a0/Psychometric-properties-of-the-WHOQOL-100-andWHOQOL-BREF.pdf

Chrastina J, Ivanová K, Krejčířová O, Ježorská Š. Results of subjective quality of life research using SQUALA standardized questionnairre. Profese Online. 2014; 7 (1): 1-8. DOI: 10.5507/pol.2014.001

Dragomirecka E, Lenderking WR, Motlova L, Goppoldova E, Šelepova P. A Brief Mental Health Outcomes Measure: Translation and Validation of the Czech Version of the Schwartz Outcomes Scale-10. Qual Life Res. 2006; 15 (2): 307-12. DOI: 10.1007/s11136-005-1389-y

Dragomirecká E. SQUALA: Subjective quality of life analysis: příručka pro uživatele české verze Dotazníku subjektivní kvality života SQUALA. Praha: Psychiatrické centrum; 2006

Kim SH, Jo MW, Lee S. Psychometric Properties of the Korean Short Form-36 Health Survey Version 2 for Assessing the General Population. Asian Nurs Res. 2013; 7 (2): 61-66. DOI: 10.1016/j.anr.2013.03.001

Huo T, Guo Y, Shenkman E, Muller K. Assessing the reliability of the short form 12 (SF-12) health survey in adults with mental health conditions: a report from the wellness incentive and navigation (WIN) study. Health Qual Life Outcomes. 2018; 16 (34). Disponible en https://doi.org/10.1186/s12955-018-0858-2

Vera-Villarroel P, Silva J, Celis-Atenas K, Pavez P. Evaluación del cuestionario SF-12: verificación de la utilidad de la escala salud mental. Rev Médica Chile. 2014; 142 (10): 1275-1283. DOI: 10.4067/S0034-98872014001000007

Jacobson BH, Johnson A, Grywalski C, Silbergleit A, Jacobson G, Benninger MS, et al. The Voice Handicap Index (VHI): Development and Validation. Am J Speech Lang Pathol. 1997; 6 (3): 66. DOI: 10.1044/1058-0360.0603.66

Hancock A, Owen K, Seigfriedt L, Brundage S. Reliability and validity of the transgender selfevaluation questionnaire. Paper presented at: Voice Foundation’s Annual Symposium; 2009; Philadelphia, PA.

Davies SM, Johnston JR. Exploring the Validity of the Transsexual Voice Questionnaire for Male-toFemale Transsexuals. Canadian Journal of Speech-Language Pathology and Audiology. 2015; 39. 40-51. Disponible en: https://psycnet.apa.org/record/2015-15504-004

Cash TF, Fleming EC. The impact of body image experiences: Development of the body image quality of life inventory. Int J Eat Disord. 2002; 31 (4): 455-460. DOI: 10.1002/eat.10033

Pusic AL, Klassen AF, Scott AM, Klok JA, Cordeiro PG, Cano SJ. Development of a New PatientReported Outcome Measure for Breast Surgery: The BREAST-Q: Plast Reconstr Surg. 2009; 124 (2): 345-353. DOI: 10.1097/PRS.0b013e3181aee807

Cohen WA, Mundy LR, Ballard TNS, Klassen A, Cano SJ, Browne J, et al. The BREAST-Q in surgical research: A review of the literature 2009–2015. J Plast Reconstr Aesthet Surg. 2016; 69 (2): 149-162. DOI: 10.1016/j.bjps.2015.11.013

Transgender Europe (TGEU). IDAHOT 2016 – Trans Murder Monitoring Update [Internet]. TvT. 2016 [citado 10 de marzo de 2019]. Disponible en https://transrespect.org/en/idahot-2016-tmmupdate/

Schalock RL, Verdugo-Alonso MÁ. Calidad de vida. En: Discapacidad e inclusión: manual para la docencia. Salamanca: Amarú; 2013. p. 443-461.

Verdugo MA, Schalock RL, Keith KD, Stancliffe RJ. Quality of life and its measurement: important principles and guidelines. J Intellect Disabil Res JIDR. 2005; 49 (Pt 10): 707-717. DOI: 10.1111/j.1365-2788.2005.00739.x

Borja-Jiménez K, Gabriela OC, Castillo-Parra G, Ostrosky F, Salin-Pascual R. Evaluación afectiva en una población transexual. Rev Mex Psicol. 2010; 27: 293-299. Disponible en: https://www.redalyc.org/articulo.oa?id=243016324017

Sen AK. La calidad de vida. Universidad de las Naciones Unidas, World Institute for Development Economics Research, Nussbaum MC, Reyes-Mazzoni R, ed. México: Fondo de Cultura Económica; 2000.
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